Welcome to Lydia's World
We remain dedicated to supporting quality of life issues facing children who are being treated for childhood cancer. Our aim is to create awareness of neuroblastoma, a rare childhood cancer. Someday soon there will be a cure.
For information about neuroblastoma please e-mail lydiasluau@verizon.net
About Lydia
On September 1st 2006, at 22 months of age,
Lydia Nicole
Frederick was diagnosed with Neuroblastoma. Lydia underwent 4 months of chemotherapy, surgery to remove most of her tumor,
2-tandem stem cell transplants, 6 rounds of total body irradiation and 6 rounds of radiation to her belly
(the site of the initial tumor).
Sadly, on the morning of September 8th 2007 at 4:54am Lydia passed away at the age of 2.
Neurblastoma is a cancer of the sympathetic nervous system effecting about 650 children in the US every year. Why neuroblastoma strikes is a mystery. There is currently no way of knowing what child will get this disease or even what causes it. There is currently no cure and the survival rate is less than 40%.
The
Relapse survival rate is 0%.
contact us lydiasluau@verizon.net
©2008 Lydia's Luau Foundation